| Organisation | Initiative | Link to the general initiative | Material | Description | Link |
|---|---|---|---|---|---|
| ABC Radio | Health report | https://www.abc.net.au/listen/programs/healthreport | Podcast | Podcast on life insurers being banned from using genetic data | EN: https://www.abc.net.au/listen/programs/healthreport/genetic-testing-life-insurance/104378404 |
| Podcast | Podcast on what AI scribes can (and can't) do for healthcare | EN: https://www.abc.net.au/listen/programs/healthreport/ai-in-healthcare-scribes/105568802 | |||
| CCNE | États généraux de la bioéthique | https://www.ccne-ethique.fr/publications/rapports-de-synthese-des-etats-generaux-de-la-bioethique | Report | French citizens’ opinions on several bioethical topics, incl. genomic medicine | FR: https://www.ccne-ethique.fr/sites/default/files/2022-05/Rapport%20de%20synth%C3%A8se%20CCNE%20AG2022%20aout.pdf |
| De Maakbare Mens | Overal Lespakket Genetica | https://www.demaakbaremens.org/themas/erfelijkheid/ | Teaching material | Educational material to launch the ethical and societal debate in secondary school classrooms | NL: https://www.demaakbaremens.org/themas/erfelijkheid/overal-dna-voor-leerkrachten/ |
| Eurordis | Screen4Care | https://www.screen4care.eu/people-living-with-rare-diseases/involvement | Report | Survey’s results about European rare disease patients’ opinion on newborn screening | EN: https://www.eurordis.org/publications/voices-on-newborn-screening-the-report/ |
| Genome Quebec | Genome Quebec | https://genomequebec.com/en/ | Website | Interactive educational website on genomics | FR/EN: https://genomequebec.com/en/educative-content/educational-space/ |
| Genomics England | Public dialogue on whole-genome sequencing for newborns | https://www.genomicsengland.co.uk/initiatives/newborns/engagement | Report | UK citizens’ opinions on whole genome sequencing for newborn screening | EN: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/959931/WGS_for_newborn_screening_FINAL_ACCESSIBLE.pdf |
| Genomics England | A new public dialogue on genomic medicine: Time for a new social contract? | https://www.genomicsengland.co.uk/news/public-dialogue-report-published | Report | UK citizens’ opinions on genomic medicine | EN: [replace with the exact PDF link from your doc] |
| Genomics England | A Qualitative Exploration: Views of Black African and Black Caribbean Communities on the 100,000 Genomes Project | https://www.genomicsengland.co.uk/ | Report | Opinions of Black African and Black Caribbean communities on the 100,000 Genomes Project | EN: [replace with the exact PDF link from your doc] |
| Health Research Authority (HRA) and Human Tissue Authority (HTA) | Public dialogue on consent to human tissue and linked health data in research | https://sciencewise.org.uk/ (project page) | Report | UK citizens’ opinions on consent procedures in human tissue research and related health data | EN: [replace with the exact PDF link from your doc] |
| Sciensano | Citizen forum | https://www.sciensano.be/en/projects/citizens-forum-user-centric-information-healthcare | Report | Belgian citizens’ ethical recommendations on genomic information usage | FR: [replace with FR PDF link] |
| NL: [replace with NL PDF link] | |||||
| Sciensano | DNA Debate | https://www.sciensano.be/en/projects/dna-debate | Booklet | Nine case studies raising ethical and societal issues in genomic information usage | FR: [replace with the exact booklet PDF link] |
| Sciensano | Teaching material | Pedagogical exercises to launch the ethical and societal debate in secondary school classrooms |
NL:
[replace with NL PDF link] FR: [replace with FR PDF link] |
||
| UNC Chapel Hill | The Age-Based Genomic Screening | https://www.med.unc.edu/genetics/abgs | Website | Educational modules on genomics | EN: https://www.med.unc.edu/genetics/abgs/parent-community-engagement/ |
| Wellcome Connecting Science | Your DNA, your say | https://www.wellcomeconnectingscience.org/project/your-dna-your-say/ | Videos | Educational videos on genetics |
EN:
https://vimeo.com/showcase/4657358
Twi (Ghana): [replace with YouTube playlist link] |
| Interactive website | Educational teaching materials on genomics | EN: https://www.yourgenome.org/ |